Caden's Life
I thought about Caden* again today. It happens every time I sit down at the piano. For a year in high school, my mother had arranged for me to have free piano lessons from a kind neighbor who lived down the street. I babysat her children for an hour every week, and in exchange, she gave me a 30- minute piano lesson.
The lady had two
children, a girl who was about 5 years old, and a 3-year-old, Caden. The thing
about Caden was that his mother had contracted toxoplasmosis when she was
pregnant with him (that’s the thing they warn pregnant women about and why they
should avoid changing kitty litter) and the result for Caden was severe birth
defects. At 3 years old, he sat in a special chair most of the time. He could
not walk, he could not crawl, and though he was bigger than a 6-month-old,
developmentally he could do only about what a 6-month-old could do. As far as his future was concerned, children
with his condition did not usually live past their 10th birthday.
Occasionally, he
would startle, arch his back and begin to cry. His mother would take him out the
chair, rock him, and calm him and eventually he would calm back down and smile
at her again.
Other than the
startling and arching, Caden was a happy child. He smiled, he cooed, he made
noises, he attempted a few simple words, and he loved to sit under the blue sky
in a special swing in his backyard. He loved faces, and he loved people. His
older sister accepted his differences with ease, and though his mother sometimes
looked troubled, she cuddled him, carried him around, and loved gazing into his
face.
They were
Christians and believed that Caden was a special gift from God. I agree with
them. Once you got to know him, Caden was just any other baby, any other little
child with their own personality and their own likes (Winnie the Pooh) and dislikes
(being left alone.) I have no idea if the help of a 15-year-old one hour a week
actually made Caden’s mother’s load easier, but I do know that Caden blessed
me. I was blessed to see how a family behaves who has a special needs child,
and it was oddly normal and oddly comforting. To them, Caden was just a member
of the family. Last I heard, he was
still alive at about 8 years old, still sitting in a special chair, still using
basic words, still wearing diapers, but still smiling. I lost track of that
family long ago, and Caden is now most likely gone. I have no doubt that he is
whole and healthy in the arms of Jesus.
How do we assess
the worth of a life like Caden’s? In his short life, there was pain, but there
was also sunshine, smiles, a sister, a mother and father, and of course, Winnie
the Pooh. I know some able-bodied people who are not so lucky as Caden.
So when I sit down
to re-learn all the piano I’ve forgotten over the past 20 years, my heart
always goes back to Caden, and how his family modeled love and the value of all life.
*I am not in contact with this family and do not have permission to publish their son's real name.
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